Newsroom
Hope for PDCD in the Press
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How I Became a Dragon Mom
This is a story about finding courage and hope after a new and devastating diagnosis. It's also a story about dragons. Op ed essay about the Pimentel family’s journey to a diagnosis.
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A Child with a Fatal Disease that's "Not Profitable to Cure"
Video interview with the Higbee Family with Christopher Ulmer is an American disability-rights advocate, former special education teacher, YouTuber, and founder of the non-profit Special Books by Special Kids.
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Peters family pushes for Screening of Rare Childhood Disease
Separately, a UPMC Children's Hospital of Pittsburgh physician and researcher is working to implement newborn screening for PDCD
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Boy with Life-Threatening Disease Throws First Pitch at Wild Things Game
A young boy with a life-threatening disease was able to kick off a local baseball game and help raise money for other children suffering from the same illness.
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FDA Listening Session for Pyruvate Dehydrogenase Complex Deficiency (PDCD)
In August 2023, Hope for PDCD helped design and distribute a survey about the disease burden and three of our board members participated in a closed listening session for the FDA.
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Rep. Rutherford Call for Screening and More Funding for PDCD Research
Rep. Rutherford (FL) call to action in honor of World Mito Awareness Week. Skip to the 5 min mark to hear Congressman Rutherford’s speech.
